“You want me to WHAT?” he asked.
I tried again. “For this week’s blog, I would like you to answer some questions about what it’s really like being married to a woman with hearing loss.”
“ANY woman with hearing loss – or just YOU with hearing loss?”
“Well, since you’re married only to me, and I’m hard of hearing, feel free to take your pick.”
He thinks a moment. “No.”
“Why not!?”
“Because my gut tells me this may not go well. When people say what they really think, about anything, sometimes shit hits the fan.”
“Well, the fact that you just said that, tells me there are issues that need to be aired. C’mon, it will be fine – we’ve talked about this stuff before.”
“Can’t you write about something else?”
“OK, what if I promise, that no matter what you say, I won’t punch you in the face or move to separate beds.”
He sighs, which is as close to a ‘yes’ as I’m going to get.
“OK, thanks honey. Here’s a list of questions that you can think about and then give me the answers on paper. That way you can be a cowardly lion and not have to look me in the eye when you say stuff you think might upset me. Which it won’t, I promise.”
Before heading off with the questions, the Hearing Husband looks at me as if for the last time – as if our relationship is about to take a sharp turn to the right, over a road of hot coals or cold thumbtacks.
When you first met me, did my hearing loss give you any concerns about going forward with our relationship? (Give examples and don’t mention that we worked together.)
On the contrary, that was part of who you were. I thought that someone who had developed such a fun personality and did well in spite of her hearing loss was going to handle life’s other inevitable challenges too, and therefore be a great partner going forward. And boy, did I get that right! But I can imagine that it would be hard for couples when hearing loss occurs later in their relationship.
You proposed to me when I wasn’t quite awake and didn’t have my hearing aids in. Did you:
a. Plan this as a practice round, hoping that I wouldn’t open my eyes when I did?
b. Forget that I was hard of hearing?
c. Hope that I wouldn’t speechread you correctly and would answer ‘no’, thereby letting you off the hook?
None of those quite fit. You’re an excellent speechreader, so if I pronounce something well, you usually get it right. I’d wanted to ask you the night before and now I was running out of opportunities and nerve. I remember looking at you for 15 minutes or so, saying it over and over; it was a relief when you finally opened your eyes and could see what I was saying!
What are the major challenges in a this relationship with hearing loss?
Losing sight of the puck when the captioning covers it during a TV hockey game. (And this is not a minor thing, I really love watching hockey!) Truthfully, the biggest challenge is making sure our time with friends and family is accessible for you, because of your great love for conversation. Sometimes I just leave it up too much to you, to ensure the environment is right.
[Me: “C’mon, what about having to repeat what other people are saying all the time? What about when I get huffy based on what I thought I heard you say?”
Him: “Minor stuff.”]
After 25 years, would you say that you are more, or less, patient with my hearing loss?
More patient. 25 years mellows you a lot.
How would you rate yourself as a hearing partner? (Give examples to back up your claims.)
This question is a setup! I will say only that how you score me is what counts. We’re still together after 25 years – you want more backup than that?
If you could change anything about me, with respect to our relationship with hearing loss, what would it be?
Not a thing about you.
If you could change anything about yourself with respect to our relationship with hearing loss, what would it be?
That I had taken up sign so I could have participated in some of your conversations with others, rather than being on the outside.
[Me: “But, Doug, I don’t really sign, so you couldn’t have been on the outside for long.”
Him: “Long enough.”]
Any additional comments?
I think our health system does not give nearly enough informational and financial support to the hearing loss field. It needs to start with those directly affected, including family and friends, who need to ask for change from government and industry, but I know not everyone is capable of this type of advocacy.
And if that’s what the Hearing Husband really thinks – what was he worried about? Hearing loss touches every family differently; some couples crack under the strain, but we are lucky, partly because we have our priorities more or less in sync.
Although he won’t say it here (or anywhere), he and I do have our moments of frustration. If he communicates in a less than stellar manner – say, asking a question as he walks away – I’m liable to pounce on him, hissing, claws out. And there’s something else he won’t tell you – but I will. When he is driven temporarily insane by my hearing loss, he spends a few seconds over-enunciating, deliberately, which makes me equally nuts. He’s a big guy, over 6’6”, so we’re talking seriously big lip movements!
But he will tell you, I think, that these are just nano-moments in time – they happen and then they pass. Life goes on, because our identities as the Hearing Loss Woman and the Hearing Husband are only two of the names we go by….
(Gael, I read this to my husband, with great relish – he immediately identified with the husband’s responses, but then said…..)…(btw – we’ve been married 39 years, and worked together before that also)
ok, now where is the reverse test? how do I (as the hearing loss wife) accommodate me? …he’s had 40 years plus accommodating this, so he should have some credibility…..if I say something snarky as I pounce on him after he tries to talk to me as I’m walking away…..whose accommodations are being met here?
she’ll have to formulate the questions for him to ask her,…..(or maybe should get these two together?) …couldn’t resist sharing this Gael! I love your blogs, and this one really hit home! IF (and only IF ) your husband would like to share this unique scenario with him, his name is Gary Clark, and his email is [email protected] What a hoot it would be!
Gael, you are one lucky woman and your husband is one lucky man. I can honestly say, I am not as fortunate. My husband knew very well about my hearing loss when we met and I had hoped, with time and patience on both our parts, he would develop a better understanding and sensitivity to hearing loss. However, he didn’t. Even with my involvement in the hearing loss community, my work with deaf children, my online involvement, I feel I have failed to get through to him.
He is what I call a “deaf hearing person.”
I’m gonna test my husband!! We’re 35 years in, OH MY!! we still have hiccups & awkward situations. That’s life, and how we deal with those situations is what makes the difference between a teaching opportunity (room for improvement) or doomed to repeat it over and over and over…….Needless to say, behavior repeats still happen along with what did you say repeats. Ah. Never a dull day.
I’ve known my hearing husband 40 years now (33 of those years we’ve been married) and I was well into hearing loss when we met (I was 14 years old), so he’s had a lot of time to get used to my not hearing. However, I coped very well for many, many years and I made it easy for my family to forget that I couldn’t hear. I didn’t really give my severe hearing loss much attention other than going to the audiologist and ENT periodically to have my hearing tested and to try hearing aids (I’ve never worn hearing aids as they never really helped me–that’s probably because of my severe hyperacusis). It’s only been about 15 years that I’ve ‘owned’ my hearing loss (didn’t try to hide it, but still coped very well up until that point and was in the habit of not mentioning it to anyone), and the last 5 years that I really came to terms with my deafness and have sought out others with hearing loss. Progressive hearing loss really is a roller coaster ride and I’m struggling right now to come to terms with another big hearing dip, so things aren’t so rosy at the moment.
When I read your “major challenges” question and your husband’s answer, “Truthfully, the biggest challenge is making sure our time with friends and family is accessible for you, because of your great love for conversation. Sometimes I just leave it up too much to you, to ensure the environment is right.”, it made me cry. I’m really struggling with this, as I feel I don’t have anyone but myself to depend on, and I’m not hearing much of anything right now so I’m not feeling a part of much at all socially. ~~Michele
*hugs* we all go through this and it’s hard to find the right friends and even harder to find a community. My most frustrating moment ever was when I went to a Deaf event and most of the people there were hearing ASL interpreters and they wouldn’t sign+speak for me – my sign skills aren’t great – so I was Still left out.
I could really relate to some of this, although my hearing loss is recent, and we have been married for 42 years. The only big issue we have is when my husband mumbles or talks with his back turned. When I ask him to repeat, he gets annoyed and says it really loudly and over-enunciates, as if it is my fault for not paying attention. This does not happen often, but once in a lifetime is enough!
Loved this post; as I do with all of your writings. Not only is it a testament to your own personalities & relationship but it gives me hope that when (learning to not say “if”) I start dating again, that all is not lost when couples find their stride in communicating with and for one another. Thanks for the pot of gold at the end of a rainbow!! Now I just have to get out there.
Gael you have a winner, that is all I can say.
Hang on to him.
Donna
Well written and I feel that he is a great husband and that more husbands should behave like him.
I really enjoyed reading this post. What a great relationship!
This is a wonderful spot on, heart warming enjoyable read. Thank you again Gael for doing what you do