In the hearing loss world that I live in, there are HoHs and there are Pros:

HoH: Refers to a person who has hearing loss and who may also identify as hard of hearing, hearing-impaired, or hearing aid/cochlear implant user. (This term does not refer to all those affected by a person’s hearing loss, such as the moms and dads, life partners, children, and friends.)

Pro:  Refers to someone who works in a hearing healthcare field, such as an audiologist or hearing instrument specialist, but this category also can include an Ear, Nose & Throat doctor, hearing aid manufacturer, and/or an assistive technology sales rep. 

 

…now that we’ve got that out of the way…

 

If you’re a HoH, you have most likely—hopefully—met a Pro by now. You made an appointment, walked through that door and sat down to discuss your hearing with this Pro. (Just asking, did you check out the certificates on the wall? You want to see something official hanging there, with more substance than proof-of-participation in an online hearing aid course.)pro

At every meeting with your Pro, there should be a two-way conversation, an exchange of information. The Pro will ask you questions about your lifestyle and your hearing loss has affected it. They’ll ask you—although not in these exact words—how you’re coping. She or he should explain the Big Picture of hearing loss—the things you need to know about your hearing that will help you move forward. At appropriate times, you’ll discuss different  communication strategies, including assistive technology.

The key word is discuss. At no point should you be told what to do, when to do it, and that this-hearing-aid-here is THE best and ONLY option for you. 

It doesn’t matter if you’re new to hearing loss, or if you’ve been using hearing aids for years—you have choices and input into decisions involving your aural rehabilitation, a fancy term for learning how to communicate and live better with hearing loss. If your Pro is bossy, a know-it-all or an uber-salesperson, get yourself a new Pro. 

Most Pros are not like that; they welcome our input, because they are trained practitioners who care. However, some are a little behind on the learning curve of how to involve you in a two-way discussion, and you must learn to express your needs, to ask questions.

And it’s not always easy being in their shoes, either. Pity the poor Pro who must decipher the client’s answers to important questions.

Pro:  Mr. Jones, it’s nice to meet you. Tell me why you’re here and how I can help you.

HoH:  Well, my hearing’s not as good as it used to be.

Pro:  Can you be more specific?

HoH:  OK sure. My hearing’s WORSE than it used to be.

A polished Pro will eventually draw more information out of Mr. Jones, and a set of hearing tests will help fill in the blanks. It gets tougher when Mr. Jones tries on a hearing aid for the first time; the Pro must fine-tune it with the help of the computer—and more information from Mr. Jones.

Pro:  So, how does my voice sound to you?

HoH:  Not good.

Pro:  Mr. Jones, can you give me a bit more to go on?

HoH:  OK, just quit yelling and let me think. It’s loud, with sort of a high, hollow-y sound…no, hang on…tinny is more like it. Yep, a high, tinny-hollowy sound….no wait, I’ve got it! You sound like a really loud Daisy Duck who’s gone off her meds. 

Pro:  OK, I can work with that. Anything else?

HoH:  Yes. I don’t like it.

Pro:  Well, it takes time to get used to the new sounds. Your brain has to adjust.

HoH:  My brain is already a little overloaded. I can’t remember what I had for breakfast. 

Pro:  Trust me, Mr. Jones. We’ll take it bit by bit, step by step. Before you know it, in a few short weeks, you’ll hardly know it’s in your ear.

When the HoH and Pro meet for the first time, it could-should be the start of a beautiful, trusting, effective client-professional friendship. That’s what both parties need to meet their mutual goals:

The person with hearing loss needs help in managing a life-changing hearing loss and to achieve optimal communication.

The hearing care professional wants job satisfaction, happy clients and a thriving business.

As HoHs, we need to understand that Pros cannot perform miracles unless the people they’re trying to help actively participate in the process. (And I believe that modern technology, which can coax hearing out of uncooperative cochleas and eardrums, is nothing short of a miracle!) 

Pros need to understand the same thing.  Give us the information we need, in a timely manner, help us express our feelings and needs, discuss affordable and appropriate technology, and work with us to develop a plan for better hearing and communication.

When that kind of Pro and that kind of HoH meet, magic can happen.  fireworks

 

 

 

 

hlaa-logoThis fall, I’m honoured to be featured in the Hearing Loss Association of America‘s magazine ‘Hearing Loss’.  HLAA has given me permission to share the article here. It’s a bit longer than my usual blogs, so feel free to stop reading if you get bored, or to read it in ‘bits’.  And it’s really not that long…hlm_sepoct2016_large

 

Keep your sense of humor. Experts say this is the trick to living well with hearing loss.

But – what if you don’t have one?

They say, you can learn to laugh at yourself.

What if you don’t WANT to, or CAN’T, or don’t know HOW? What if hearing loss has amputated your funny bone?

Hearing loss just isn’t funny. Quite the opposite; it drains us physically, emotionally and often financially. It’s not easy to guffaw at malfunctioning hearing aids, confused conversations and frayed relationships. Giggles don’t bubble from our lips when we make a comment and other people stop talking and give us the “you’ve got two heads” look. This means the discussion moved on to something else and we’re stuck in five minutes ago. (Why can’t someone announce a new topic with, “And now we shall talk about politics”?) 

Even people who are natural rays of smiling sunshine find it challenging to deal with a life-changing hearing loss. How many people, reeling from a 20 decibel drop in hearing, would say, “Gosh, isn’t that just my luck? Say, did you hear the one about the guy who couldn’t hear his wife…” 

 How was I supposed to laugh when a goofy mutt woke me up to show off his breakfast: my hearing aid, with bits of it still clinging to the doggy-curls of his chin? How to cough up an immediate chuckle at embarrassing mis-hears such as accepting a date, only to find the man had asked something quite different? Or when I delivered one of my famous non-sequiturs: “Mom, can you help me with an essay?” “That’s great, say hi to him for me.” 

windyAlmost every hearing loss joke is a variation on one or two basics – which the average person with hearing loss will hear about a thousand times in their lifetime. The first goes something like this: “What day is it?” “Thursday.” “Me too, let’s get a drink.” And if I had a dollar for every time I’ve asked, “Would you mind speaking up, I have hearing loss,” and the answer shoots back, “Pardon?”

We’re expected to laugh at all this? 

Yes. Because it helps. (And people with hearing loss can laugh in group conversations. We laugh when others laugh and stop laughing when they do. Admittedly, that’s not quite the same thing as a real sense of humor, and our bluffing usually just gets us into more trouble. Just saying that we do know how to laugh…)

Growing up in a small family – my parents, one sister and I – it was easy to understand dinner conversations because the kitchen table wasn’t big; someone’s lips were only two dinner plates away. Even so, I’d give goofy answers to something I thought I heard, which amused everybody but me. We laughed a lot, en famille, because my father said the Lord loves a cheerful idiot and he felt we all qualified.

But everything is funny, according to Will Rogers, when they happen to someone else. I see hearing people (especially the show-off types, who claim they can hear a pin drop two counties over) almost implode as they try to suppress a smile or laugh. But later, when we’re out of earshot – which is usually not too far away – they tell these stories. Our communication faux pas and verbal boo-boos make us the friendly butt of funny stories: “I told Gael we were worried about our son’s shyness, and she said thank heavens no one in her family has sinus trouble.” Har-de-har-har.

But hey, sometimes I laugh while the Hearing Husband doesn’t. He and I were living in a condo, waiting to move into our first house. He went to the lobby for some long-forgotten reason, and I closed the door after him and went back to watching a movie, which was loud. At some point, I might have vaguely wondered why he wasn’t back, but I was engrossed in the movie. At a momentary break in the noise, the phone rang beside me.

“Hello?”

“IT’S ME!”

“Oh hi, honey. Where are you?”

“In the LOBBY using the entrance phone!”

“But what…OMG…did I lock you out?”

“YES…YOU…DID! I’ve been back and forth between the apartment, pounding on the door, and back down here, and calling up for a whole bloody half hour!”

C’mon, don’t you agree this was funny? I mean, it’s not like I locked him outside in a snowstorm in his underpants! The Hearing Husband is also not amused with the consequences when I don’t hear the water running. Our two-year-old somehow flipped on a sink tap without me seeing or hearing it, and the resulting flood knocked out our phone line and electric garage door opener for 24 hours. And we’re just starting to laugh about the recent flood in our camper when I didn’t quite turn the tap all the way off before going to bed. Mopping up at 4:30 in the morning definitely ain’t funny.us

Parenting with hearing loss is challenging. I was engaged in an up-the-stairs shouting match with my teenage son; would he please get a move on and pack his darn hockey bag! I felt a tap on the shoulder; he was behind me, hysterical at watching me yell and gesture up the stairs to an empty bedroom, while he’d been answering me from the basement – where he was packing his darn hockey bag. I hate getting caught out like that.

After a lifetime of hearing loss, this stuff still happens. Even with a commitment to good communication, hearing aids (and soon, a cochlear implant), I still have occasional bad hearing days when I seem to ask for repeats with every breath I take – and when I could swear that somebody just passed a law that all citizens must speak as unclearly as possible with Gael Hannan for 24 hours. On those days, I’m a self-centered, walking pity party.

But the next day, I can usually manage a whimpering smile at my day of bad hearing; a couple of days later, maybe a weak ha-ha. Eventually, the embarrassment and frustration fade to black, leaving the funny bits intact. (Admittedly, Digby the dog did look hysterical with hundreds of dollars’ worth of hearing aid hanging from his hairy face.)

In most cases, our hearing loss is permanent; we get to keep it – forever and ever, amen – and if we don’t find a way to laugh, all we’ve got left are frustration and tears. Comedian Bob Hope said, “I have seen what a laugh can do. It can transform almost unbearable tears into something bearable, even hopeful.”

It is possible to hone the hearing loss sense of humor, even if you think you don’t have one. The first step is understanding that you’re not the only one going through this; you share it with millions of people around the world. The next step is to connect with some of these people, either in person or on social media. Through HLAA and other consumer groups, you can share stories, some heartbreaking and some hilarious, which are universal; only the names, dates and locations are different.

Hearing aid feedback when someone leans in close for a kiss? We’ve been there, done that. Spent a sleepless night in a hotel, staring at the alarm clock and clutching the Shake-Awake in fear of missing your flight? Yup. Had to figure out if your man really just said, “Let’s get married” at 5 a.m. – when you didn’t have your hearing aids in? Okay, maybe that only happened to me (but lucky for him, I’m an ace speechreader).

Allan Klein, author of The Healing Power of Humor, wrote, “You may not be able to change a situation, but with humor you can change your attitude about it.” When hearing loss causes its inevitable, daily, communication breakdowns (some tiny, some big), we do what we can to get through them.

No, hearing loss isn’t funny – until you find the power to tell the joke on yourself. If you can’t, allow me to quote the famous t-shirt: ‘If you can’t laugh at yourself, I’ll be happy to do it for you.’ 

We can laugh at our hearing loss. Just give us some time.  

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